~seizure FREE me~

~seizure FREE me~

Friday, May 7, 2010

Somethings got to change...again

He's having a reaction to the dairy. I feel so beyond frustrated. While I changed a child and a bed full of nasty poo in the middle of the night last night I felt numb. Beyond crying. We are just trading one thing for another around here. I knew it was getting worse but I was trying to deny it. Yesterday he started his weird behavior too, the stuff that looks autistic. This is the way he got before (over a year ago when we were trying to figure out his food sensitivities) when we reintroduced dairy into his diet. He starts giggling frantically about nothing, hitting his hand repetitively on the ground or flailing them around in the air. He starts having tantrums, and crying over nothing or everything. Sitting by himself rocking. Talking less, being unresponsive. It will just get worse and worse we already know that. So know I have to tell the dietitian that he is having a reaction to the dairy like I feared he would. Things are going to get real complicated. They said that we could try to do the diet dairy free, but they didn't sound very sure about it. Plus I'm all ready having a hard time getting him to eat what he needs to eat. Of course that could just be because his stomach hurts so much from the dairy and it might get better once the dairy is removed again. I knew he would have a reaction. I've seen it happen every time he's gotten his hands on some dairy. But the dietitian gave me the hope that maybe not this time because he's only eating the high fat dairy (butter, heavy cream) and none of the others that are high in protein lower in fat. I guess he's sensitive no matter what. He's just a super sensitive being. I don't want to go back to changing numerous poopy diapers a night like I was before discovering his sensitivity to dairy...so somethings got to change...again.

1 comment:

Kat said...

Oh man. It is just one thing after another, isn't it? Ya gotta catch a break sometime. Something has got to give. I am so sorry. I can't imagine how hard this must be.
Stay strong and stay positive.
Continued prayers!