For the last few days Atty has had only a few really mild seizures. Not even the full body kind, just really short absence seizures and some stumbling. This morning after he woke up I went to put on his helmet and he resisted. I thought about it for a moment and then decided that I didn't want a power struggle. I need the helmet to be a good thing for the times he really does need it. So I said okay and took a deep breath. I thought back on how much he was falling before the helmet when we had to wait about a month to get it (that was so frustrating!) and how little he is falling now. Then I bravely faced the day (after calling my husband to tell him how nervous I was).
I can tell that he really likes the feeling of being helmet free. We had a couple of hot days and by the end of the day his head would be all sweaty. I would take his helmet off before bed and he would want me to rub his head and scritch (scritch being lighter then a scratch for anyone who's wondering, ha, ha) it a little because I think it would get all itchy. Anyways I am loving seeing his beautiful red hair again. That is definitely one of the things I was missing the most, I absolutely LOVE the color of his hair.
Gorgeous, shiny, brilliant, fiery hair.
This picture gets me all emotional. Because I've been waiting a while now to see the boys all playing together again...just like before. So far today I haven't noticed a single seizure!! I can hardly believe that we tried 6 different medicines and didn't get any relief...until we tried a diet. Wow.