Atty's story: Beautiful miracle

Tuesday, April 26, 2011

Beautiful miracle

Last Easter.

This Easter.

What a beautiful miracle, I am one happy mommy. I could hardly get a picture of him as he raced around with his brothers looking for eggs and talking a mile a minute. We did a candy free Easter, although I did make him some really cool treats that were almost like peanut butter cups and he loved them. I got his brother some bulk treats like yogurt covered raisins and chocolate peanut clusters and Atty didn't seem to even notice. I knew if I stayed away from the shiny wrapped stuff he wouldn't care as long as he had a treat of his own. I mostly put toys and trinkets in the baskets and they were all happy. I loved celebrating Easter this way as I've never been big on the candy and junk... I'm sure at this point that even if Atty no longer needs the diet at some point in the future {it does happen} we will still celebrate holidays with a lot less junk. We did decorated boiled eggs and a few plastic eggs with money for the egg hunt. It worked out beautifully. I have now done every major holiday on Atty's diet, success!!! It feels wonderful. :)

3 comments:

mommytoalot said...: That is amazing. His entire store is a miracle. I think you should write a book. Before you blogged about Atty I was totally unaware of the true affects of the Modified Atkins diet for seizures.
thank you for sharing his story.; April 26, 2011 at 11:27 PM
lifebythehandful said...: The difference a year has made is amazing. I am so glad that he is doing so well. It's been forever since I've been on the blogs, so it was great to come and check in and see such beautiful news!; April 27, 2011 at 8:30 AM
Kat said...: Yahoo!!!! That is just so exciting. And amazing. And miraculous!!! I am so happy for y'all! :)

By the way, I think you have been sending me emails every once in a while, but they never actually get to me so I can open them. They go in my spam and I can't open them. Don't know why. Here is my new email in case you have an old one or something: katchic22@yahoo.com

:)

So glad you had such a wonderful Easter!; April 27, 2011 at 12:52 PM

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Side note and a little history~

Please NOTE that I am in No Way giving medical advice on this blog, and I am not a dietitian, so although I think it is a great idea to learn new things from others I also strongly believe that no one should blindly follow anyone. You should always do your own research. If you are making medical decisions ask a medical professional (or two or three). What works for our family will not necessarily work for yours. All recipes are simply suggestion that you should research or talk to your dietitian about before using. Remember as you are reading this blog that it is simply the journal of a tired mom searching for answers to her sons health problems and a place to document our journey. By sharing recipes as well I hope to inspire and help others out there in similar situations. :)

And now for a little history on Atty:

Atty was originally diagnosis with grand mal seizures after his first seizure in January of 2010. Now 6 medicines later, some of which failed miserable, none of them working optimally, I have been told that my child has intractable seizures . His seizures branched off from grand mal to include petit mal, tonic spasms, and drop attacks. As well as some that just seem to baffle everyone. He's had numerous hospital stays, appointments, a muscle biopsy, a spinal, more blood draws then I can count or care to remember, an MRI, a CAT Scan, an EKG and a few EEG's. During his last EEG they noted 60 seizure spikes in about 45 minutes. In April of 2010 he was not walking or sitting up on his own, he could barely talk, he was throwing up all the time, had lost an interest in food for the most part and was continually at risk of becoming dehydrated. My happy Atty was struggle to smile and instead cried the majority of the time he was awake. It was heart breaking. We were about to start the Ketogenic diet, but while waiting until our turn his dietitian started him on the Modified Atkins for seizures diet. What we have witnessed since then has been nothing short of a miracle! We are not sure if we are going to go all the way onto the Ketogenic diet now because what we are doing is already working wonders! I can hardly believe we have come so far so fast. I wish there was a good way to spread the word to give hope to more parents out there that were in the same place we were. More people should know about this because it truly has worked for many! My son is one of them!

Once again to make myself perfectly clear this blog is simply for me to journal our experience as we start down this new path together. I want Atty to know that I never stopped searching and I never gave up.

*To the world you may be only one person, but to one person, you may be the world.*