~seizure FREE me~

~seizure FREE me~

Monday, March 21, 2011

Every mother has a little bit of warrior tucked deep inside...

Just finished Mother Warriors by Jenny McCarthy, amazing book, the last story about the little boy with seizures that ended up dying made be bawl! I don't understand why some people refuse to acknowledge that there are children being healed from Autism or seizure disorders through alternative means. {diet, supplements, biomedical interventions, etc...} There are many moms out there {me included} who have living proof... I had to fight every step of the way to heal my son, why is that? I had to suggest the diet to my doctors, plead my case, and watch him suffer through one medicine after another before we started on the diet. Why didn't they suggest the diet to me? It's a diet, it has a lot less side effects then the medicine, some of which have never been tested on children. It makes me angry. It makes me want to do something to get some change happening, get people talking.

What can I do?

I want to spread the word, help other mothers faced with the seemingly impossible. My son was diagnosis with intractable seizures. The out look was gloom at best. Brain surgery was being tossed out there into the open air, mentioned more and more. Brain surgery! My heart breaks for other mothers who didn't know that their child could be healed by a diet and went through brain surgery for their child. I am aware that it's not a one size fits all sort of a thing. I am always saying that nothing, absolutely nothing is one size fits all. I know that the diet hasn't worked for everyone who has tried it for one reason or another. But it has worked for many. And it could work for many more if more parents knew about it. If it was talked about in doctors offices. Not just because the parents brought it up but because the doctor is giving them another option to try. A way to heal. Seizure medicine stops seizures for some, but it's not healing. It's suppressing. It comes with a lot of side effects that the child {and family} then has to live with. I wanted to heal my son. Many, many moms want to heal their children. They just don't know how, or when they do come up with ideas they are shot down by the medical community and others. They second guess their intuition. It's an absolute shame. So many mother's voices going unheard. So many parents being turned away, shamed and humiliated for speaking the truth and wanting to heal their child. What is the big deal about thinking outside the box, taking the blinders off, and witnessing things you never thought possible?

Some times it just takes a voice or two to change a persons life. For me it was a women, a fellow mother herself and a stranger to me, mentioning the Ketogenic diet in an elevator at Children's hospital. And then my mother soon after mentioning it to me again over the phone when I was at the point of desperation. Those two women were the voice that caused the change for my son.
They could have held back worried about over stepping boundaries, saying too much or looking odd, but they didn't. Their voice planted the seed for me. I want to do that for someone else. I want to pay it forward. We need big change, and we need our voices heard.

The last chapter in her book is titled A Mother Warrior is... it is beautifully written heartfelt thoughts of encouragement for all mothers out there who feel unheard and often unsupported. I read it a few times over, and tucked it away in my heart. After reading it I now realize I share the title Mother Warrior with some amazing women!

MOTHER WARRIORS! Just saying that gives me the strength to keep going.


Kat said...

Exactly! The word definitely needs to get out there. I think that doctors don't mention it because it is something that needs to be specialized for each individual, and they honestly don't know how to do that. It is like they live in a land of absolutes only. But if something gives your child a chance of a natural and total recovery, wouldn't you want to TRY it? Heck yeah! They should at least hand out brochures or info on where you can find more information about it.

mommytoalot said...

I've never read her book. I do believe there are different ways to help children overcome symptoms of autism. Still a sceptic on a cure. As for seizure disorders I do know that meds, surgery and diets have all helped alleviate seizures for some people.
Just my two cents.