~seizure FREE me~

~seizure FREE me~

Thursday, October 14, 2010

The reality

I'm feeling a little overwhelmed with the medicine changes. They are good don't get me wrong...but keeping track of all the changes and remembering his medicine, twice a day, every day is starting to prove to be frustrating to say the least. I was suppose to go up on one of his meds last week, in order to start going down on another and I forgot. So that throws the whole schedule off and just makes it last longer. I have it all written done in his calendar and everything it's just a matter of slowing down and remembering to check that calendar. I was doing really well when all this started, but life takes over and I start slipping up on the regular stuff. I've never been good at remembering these sorts of things, I can't even remember to take a multi vitamin on a regular basis. So the medicine thing freaks me out, because it's like a thousand times more important then a multi vitamin! {I can't seem to remember to give him his multi vit. on a regular basis either, ack!} Also to make matter worse, at some point last week a dose was missed. I don't remember doing it and neither does my husband, but it appeared that I hadn't given him his medicine in the morning when my husband went to give it to him at night. I was out with a friend {Something I've been trying to do once a week, need some me time.} and he called her cell to ask me about it. My friend insisted she heard me talking about giving him his medicine that morning when we were on the phone, but it must have been the morning before. I couldn't enjoy the rest of my time out, I was quite literally sick to my stomach with fear and guilt. I cut the outing short and came home and worried the whole rest of the night and into the next day. Worried and waited to see if he would have any break through seizures...he didn't thank goodness! But every little twitch, stumble or weird look got my heart racing. I gave him extra oil, and focused on his diet making sure everything was extremely well balanced. I'm always careful with his diet, but not normally obsessive any more. I was obsessive for days, and stressed out, but slowly I've relaxed again. Not on the medicine, just in general. I really hope he doesn't have to take medicine the rest of his life. It's so stressful. Break through seizures are scary enough, but if he were to abruptly stop his meds he could go into status epilepticus, and that word makes me break out in sweats. It would make it all the harder to let go when it comes time for him to live on his own. But I'm not going to think about that right now...

I still feel so guilty about missing a dose. So irresponsible. I'm always multi tasking to the extreme and it's times like this that I realize that's not always a good thing. It makes me so distracted. It seems I'm always trying to prove how efficient I can be, I've got it, I'm on top of it, I rule. But then I don't. That hurts. It hurts me, and as in this case, it can hurt others. I'm not sure what to do about it though. There is just always so much to do, and it's just regular everyday stuff for the most part. When you have four kids, and run a daycare and take care of most of the household responsibilities and errand running it just adds up. {My husband works a lot, he's not lazy just rarely here.} Not enough hours in the day. So I rush around, doing to many things at once, and all the while thinking about what I need to do next. It's inevitable that I will forget things at times. Which I do, and it always seems to be the really important stuff. Like a credit card bill that was due yesterday, or an appointment that had been scheduled a month in advance, or medicine. Why can't it just be something like the dust bunnies in the corner?

4 comments:

Liara said...

Get one of those ugly digital watches that you can set for two times a day, the times when you need to give him his medicine. Then, when the alarm goes off, drop what ever you are doing and give him the medicine. Or, maybe he'd like to wear a watch that goes off. I just know that when I am home, I set the oven timer to go off when I need to do something, and that way if I'm engrossed in something, I don't lose track of time.

Riahli said...

That is a great idea...I'll have to look for one of those. Thanks :)

Lisa said...

i too use the oven timer. :) don't beat yourself up over the "oops" that you do. Move on. If you obsess about a mistake too long, you can't focus on making sure you do better. I only speak from experience!! You are doing great. :)

Kat said...

You are human. Stuff like this is going to happen. It just does. Forgive yourself and move on. He is okay.

You are such an AWESOME mom. You are doing an incredible job. Remember, it is because of you that he is doing as well as he is right now. You are the one that found this miracle diet for him. Not the doctors. YOU. Give yourself credit. You deserve it! You ARE awesome! :)